Voice Loss: The Story of Father Michael Mondik

by Susan Hornak Is prayer spoken or is it felt? When the voice is absent how are prayers expressed? Voice loss presents itself for many different reasons. In this case voice loss was the quiet warning signal that announced a greater challenge was yet to come. As a 26 year old young man Michael Mondik […]

How I Regained Voice and Confidence through Byzantine Chant

Byzanite Chant by Susan Reagan and Deacon Mark Koscinski What voice have I to share with the world; to express needs and wants, to bestow compliments and kindness, to ask of others how may I understand? A little over 6 years ago I experienced the sudden onset and eventual decline of my ability to speak. […]

Interview: Finding Your Voice in the Midst of Voice Loss (Dr. Paul Jenkins)

Dr. Paul Jenkins recently joined Susan Reagan to share his experience with living with a vocal disorder and overcoming challenges each day through the power of positivity. In this interview… Susan and Dr. Jenkins cover a number of exciting things, including: Enhancing and improving life with a vocal disorder The true impact of positivity Finding the voice that […]

Shop (with a vocal disorder) till you Drop!

When you are going to go shopping it is good to have a plan of action. Workers in the stores are more than likely seasonal workers so they probably do not have a good idea of where things are in the store. Grab sales ads before you plan to go shopping. Either from the newspaper, […]

POEM: Nuance of Voice

Subtle raises up or down give the listener a clue of how to interpret the sound. Prolonged exasperation of one word can change the meaning from banal to profound. Voice in its full range of verbal expression conveys joy, love, heart ache and depression. Nothing can come close to meeting its perfection in an attempt […]

Om or OMG! – A Story of Overcoming Botox Injection Anxiety

Approximately 6 years ago my life was changed forever with the onset of a rare neurological condition called Spasmodic Dysphonia (also known as, “SD”).  People with SD have the sensation of being strangled when trying to speak; each word is a tremendous effort to produce.  The disorder comes in three varieties; abductor, adductor and mixed […]

4 Tips for Dating with a Vocal Disorder

“How do I look? Gosh, I hope he likes me! Wonder if I have bad breath, let me check…..whew, all good!! Maybe I should change my outfit? I am just not going! What if we have nothing to say? Ugh! I hate dating.“ You guessed it, add a vocal disorder to the mix and the […]

“911, please state your emergency….”

“Susan, call 911, your father is having a heart attack, HURRY”! Having picked up the phone then clumsily pressing each number cautiously, the bile was rising in my throat from the sheer fear and panic of how my voice would sound when the 911 operator finally answered the call. With shaking hands hearing the sounds […]

The First Few Moments (Part 2 of 2)

Part Two |  If case you missed it…. Part 1 It was a miraculously beautiful late summer’s day in uptown Manhattan the day I found out I was wrongly diagnosed with Spasmodic Dysphonia.  Having been granted the opportunity to meet with one of the east coast’s foremost authorities on voice disorders he declared I was […]

The First Few Moments (Part 1 of 2)

Part One Even though the onset of my voice disorder was in November of 2008 it took some time for the actual diagnosis to be made. My ability to speak was steadily declining without explanation while each doctor gave their best guess as to what was actually was wrong with my voice. Somehow I was […]